VIDEO

The Mental & Emotional Hell of Living With Chronic Pain

2020

FindCenter Summary

The mental and emotional effects of living day after day, year after year with chronic pain are very real and can a lot of times be just as bad or even worse than the actual physical pain. See more...

04:50 min

Life of the Mind Interrupted: Essays on Mental Health and Disability in Higher Education

Early in her career, Katie Pryal learned that being a professor isn’t easy if your brain isn’t quite right. “I was a junior in college when I finally realized that I was different in a way that my medically inclined parents would call ‘clinical.

Katie Rose Guest Pryal

Rolling Warrior: The Incredible, Sometimes Awkward, True Story of a Rebel Girl on Wheels Who Helped Spark a Revolution

“If I didn’t fight, who would?” Judy Heumann was only 5 years old when she was first denied her right to attend school. Paralyzed from polio and raised by her Holocaust-surviving parents in New York City, Judy had a drive for equality that was instilled early in life.

Judith Heumann, Kristen Joiner

Getting Outdoors When You’re Disabled

People are disabled in countless different ways, so there are few practical tips that will apply to everyone. Yet a few key things can improve your experience.

Blair Braverman

My Disability May Be Invisible, But Here’s Why I’m Done Hiding It

In the beginning, it was difficult to let myself rest, even with the ultimate doctor’s note. I felt like I still had to push past my (extremely limited) capabilities. I had to practice slowing down and allowing my frailties to become visible even when I had the choice to hide them.

Elizabeth K. Hinnant

On Disability and Accepting Help

I couldn’t keep “proving everyone wrong” and still do all the things I wanted to do with my life.

When the World Shut Down, They Saw It Open

For some of the 61 million Americans with disabilities, the ability to work, learn and socialize from home has been an unexpected expansion of possibility.

Fatigue Management: Tips and Tricks to Conserve Your Energy

We know that up to 90 percent of all individuals with MS report that they have experienced fatigue, and more than 50 percent admit it is their most disabling symptom. This “invisible symptom” is the most common cause of disability.

About Us: Essays from the Disability Series of the New York Times

Based on the historic New York Times series, About Us features intimate, firsthand accounts on what it means, and how it feels, to live with a disability.

Peter Catapano (editor), Rosemarie Garland-Thomson (editor), Andrew Solomon (foreword)

1

I’m a “Spoonie.” Here’s What I Wish More People Knew About Chronic Illness

Understand life with chronic illness in a way that’s never been explained before, using Christine Miserandino’s “Spoon Theory.”

Kirsten Schultz

Disability Visibility: First-Person Stories from the Twenty-First Century

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture.

Alice Wong (editor)

1

EXPLORE TOPIC

Chronic Pain