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When Families Take Care of Their Own

By Jane E. Brody — 2008

As the number of people with severe disabilities, debilitating chronic diseases and terminal illnesses grows, concern about their care has focused primarily on long-term care facilities, nursing homes, home health aides and hospices. Relatively little official attention has been paid to those who provide the overwhelming bulk of services for people, both young and old, who are unable to care for themselves.

Read on www.nytimes.com

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Advice on Dire Diagnoses From a Survivor

With each diagnosis, knowing her life hung in the balance, she was “stunned, then anguished” and astonished by “how much energy it takes to get from the bad news to actually starting on the return path to health.”

Article
Jane E. Brody
2007
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How to do a Lot with a Little: Managing Your Energy

Individuals with disabilities are at a greater risk of experiencing fatigue than the general population, and this risk increases with age.

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University of Washington Aging and Physical Disability RRTC
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Feeling Body-Positive When You Have a Disability

As a woman with a physical disability, I am usually glaringly aware of how my body is the polar opposite of what is deemed the norm.

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Kimmie Jones
2016
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The Body Image Lessons I Learned From Illness and Disability

I no longer care about my body being perfect. It’s taken a long time to get here, but I’ve realized my body has been through too much to spend time and energy caring about losing that extra 10 pounds or minimizing my scars.

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Angela Hartlin
2020
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What Happens When You’re Disabled But Nobody Can Tell

The author and clinical psychologist Andrew Solomon examines the disabilities that ramps and designated parking spots don’t address.

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Andrew Solomon
2020
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The Selfless Dedication of In-Home Caregivers

In-home caregivers are the unsung heroes of the pandemic.

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Bruce Weinstein
2020
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Ann Romney: The Unexpected Treatment that Changed My MS

So much of life happens unexpectedly. For me, one unexpected turn started with a phone call from a friend of a friend who also had multiple sclerosis (MS).

Article
Ann Romney
2015
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15 Secrets of People Who Can’t Work Because of an Illness

If you have a chronic illness, you may know what it feels like to be a “full-time patient.

Article
Paige Wyant
2017
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10 Steps for Coping with a Chronic Condition

It pays to organize your approach to heart disease or any chronic medical problem.

Article
Harvard Health Publishing
2017
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9 Common Types of Guilt People with Chronic Illness Experience

If someone were to ask you what the hardest part of living with chronic illness is, they might expect you to respond with one of the physical symptoms you experience, or perhaps how this symptom affects your ability to do certain activities.

Article
Paige Wyant
2018
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Caregiver Well-Being