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The Circle of Care Guidebook for Caregivers of Children and Adolescents Managing Crohn’s Disease

By The National Alliance for Caregiving

Children and adolescents with Crohn’s disease deserve particular attention, as they often develop more severe disease, and have more specialized needs, in comparison with adults.

Read on www.caregiving.org

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What Parents Can Do to Make a Child’s Chronic Illness Easier

When a child’s wellbeing depends on vigilant monitoring and consistent medical attention, the everyday anxiety and stress that all parents deal with is made worse by the fact that failing to keep up with treatment can be a matter of life and death.

Article
Alina Morawska, Amy Mitchell
2015
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Caring for a Seriously Ill Child

Taking care of a chronically ill child is one of the most draining and difficult tasks a parent can face. Beyond handling physical challenges and medical needs, you’ll have to deal with your child’s emotional needs and the impact that a prolonged illness can have on the entire family.

Article
Reviewed by KidsHealth Medical Experts
2015
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Bella

How do you know when it’s time to take your autistic, bipolar twelve-year-old daughter to the psych ward?

Article
Edward Bradshaw
2017
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I Can’t Cope with My Child’s Diagnosis

I am haunted by the shocking discovery that our daughter, three, has a condition that may cause her to die in her teenage years. How can I come to terms with this and learn to enjoy the time we have?

Article
Linda Blair
2008
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My Daughters Are Fine, But I’ll Never Be the Same

For a parent, there is no sorrow deeper or more encompassing than the loss of a child. But there is another that approaches it, and that, paradoxically, is grief averted—the grief of the narrow escape when a child comes close to death but survives.

Article
Harriet Brown
2008
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Coping with Ill Children

Does your child have the winter lurgy? It’s horrible, isn’t it? The stress. The sheet washing. The boredom. The nagging feeling that you will probably never leave the house again.

Article
Lucy Sweet
2013
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What Not to Do If Your Child Is Sick

A pediatrician mom explains why some classic health concerns may benefit from a wait-and-see approach.

Article
Wendy Sue Swanson
2014
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Coping and Self-Care When Your Child Is in the Hospital

When your child is sick in the hospital, it can feel like you’ve entered an alternative universe. That heartache hit me like a tidal wave while caring for my desperately ill son in two children’s hospitals for eight months straight in 2015.

Article
Lisa Danielpour
2017
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Hospitals Help Families Cope: The Psychological Toll of a Child’s Illness

New approaches are finding and treating patients’ and families’ emotional distress.

Article
Laura Landro
2015
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EXPLORE TOPIC

Caregiver Well-Being