By Rachel Simmons — 2015
It’s not easy to let our kids be less than perfect.
Read on www.huffpost.com
CLEAR ALL
Born with a rare neuromuscular condition, the New York–based mother of twins and psychotherapist has dealt with physical limitations her whole life. But what these limitations have resulted in is a rich list of abilities and lessons that she is uniquely suited to pass down to her children.
With each diagnosis, knowing her life hung in the balance, she was “stunned, then anguished” and astonished by “how much energy it takes to get from the bad news to actually starting on the return path to health.”
I've written this piece partly because I hope it will make those of us with health difficulties feel less alone and partly because I hope it will help others understand how to communicate with us better. With that in mind, I hope you'll find it helpful.
A calm mind and even temper can help make peace with life’s difficulties.
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I’ve been disabled and intensely ill with the degenerative neuro-immuno illness myalgic encephalomyelitis (formerly known by the misnomer “chronic fatigue syndrome”) for 30 years.