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What It’s Like to Have Chronic Fatigue Syndrome, a Misunderstood Illness that Leaves People in Wheelchairs and Derails Entire Careers

By Alison Millington — 2020

After months of dealing with constant, extreme exhaustion that wouldn’t go away no matter how much I slept, in 2015, a doctor told me I had Chronic Fatigue Syndrome (CFS).

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When Your Loved One Has Chronic Fatigue

It’s the rare person who doesn’t need help coping with the stress, fatigue, and frustrations that chronic fatigue syndrome can bring. As a caregiver, you’ll need to learn all you can about chronic fatigue support.

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Beth W. Orenstein
2010
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Advice on Dire Diagnoses From a Survivor

With each diagnosis, knowing her life hung in the balance, she was “stunned, then anguished” and astonished by “how much energy it takes to get from the bad news to actually starting on the return path to health.”

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Jane E. Brody
2007
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How Chronic Fatigue Syndrome Is Treated

There are many options for managing symptoms and improving quality of life, including lifestyle changes, stress management, therapy, and medications.

Article
Adrienne Dellwo
2021
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Chronic Fatigue Syndrome

You may want to keep a daily diary of your activities and symptoms, so you can track how much activity is too much for you. This may help you avoid pushing too hard on the days you feel good, which can result in a “crash” where you feel much worse later.

Article
Mayo Clinic Staff
2022
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Supporting a Spouse Through a Health Challenge

If you have suddenly been put into the role of caregiver, what should you do—and how can you stay strong while you do it?

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Johns Hopkins Medicine staff
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Chronic Illness and Relationships

When romantic partners are caregivers.

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Katie Willard Virant
2020
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In Sickness and in Health: Making Love Last While Living with Chronic Illness

Keep these tips in mind when you’re trying to maintain a healthy relationship while one or both of you are living with chronic illness.

Article
Kirsten Schultz
2019
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7 Do’s and Don’ts When Your Friend Has a Chronic Illness

Here are a few tips to help guide you in supporting a loved one with a lifelong, debilitating illness.

Article
Liesl Peters
2018
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How to Help a Friend or Loved One Suffering from a Chronic Illness

Learn how to give patients and their families the support they need.

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American Psychological Association
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Chronic Disease Caregiver Resources

Caregivers should take advantage of resources and supportive services to safeguard their own health. Remember that a caregiver can’t provide proper care if their own health is compromised.

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Johns Hopkins Medicine staff
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EXPLORE TOPIC

Chronic Fatigue