By Jo Marchant — 2016
In an extract from her book Cure, Jo Marchant tells the story of Samantha Miller, one sufferer of the controversial condition.
Read on www.theguardian.com
CLEAR ALL
It’s the rare person who doesn’t need help coping with the stress, fatigue, and frustrations that chronic fatigue syndrome can bring. As a caregiver, you’ll need to learn all you can about chronic fatigue support.
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With each diagnosis, knowing her life hung in the balance, she was “stunned, then anguished” and astonished by “how much energy it takes to get from the bad news to actually starting on the return path to health.”
There are many options for managing symptoms and improving quality of life, including lifestyle changes, stress management, therapy, and medications.
You may want to keep a daily diary of your activities and symptoms, so you can track how much activity is too much for you. This may help you avoid pushing too hard on the days you feel good, which can result in a “crash” where you feel much worse later.
If you have suddenly been put into the role of caregiver, what should you do—and how can you stay strong while you do it?
When romantic partners are caregivers.
Keep these tips in mind when you’re trying to maintain a healthy relationship while one or both of you are living with chronic illness.
Here are a few tips to help guide you in supporting a loved one with a lifelong, debilitating illness.
Learn how to give patients and their families the support they need.
Caregivers should take advantage of resources and supportive services to safeguard their own health. Remember that a caregiver can’t provide proper care if their own health is compromised.